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🇪🇺 We are honored to announce that the European Economic and Social Committee (EESC) and its President Oliver Röpke have granted their prestigious patronage to our “Pathway to the Presidency” initiative!
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After the lecture by Prof. Katarzyna Kotulska-Jóźwiak, introducing the topic of Friedreich’s ataxia, Dr. Mariusz Kwarciany presented detailed clinical studies on the treatment of FA with omaveloxolone. This is currently the first and only therapy that slows the progression of the disease
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During the latest expert meeting on Friedreich’s Ataxia, Professor Alina Kułakowska, President of the Polish Neurological Society, pointed out that the introduction of the first drug that affects the course of the disease will lead to more patients with FA being diagnosed
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We invite you to watch a video report from yesterday’s meeting of experts at the Institute ‘Memorial – Children’s Health Center,’ dedicated to Friedreich’s Ataxia
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Professor Katarzyna Kotulska-Jóźwiak, head of the Neurology and Epileptology Clinic at the Children’s Health Center and Deputy Chair of the Scientific Council at the Institute of Child Health (CMHI) in Warsaw, talks about the breakthrough in SMA treatment that has taken place in Poland in an interview with Karolina Wasielewska
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We have seen how important the actions of patient organizations and the support of journalists are in creating an efficient system to help the sick, through the example of the SMA support program, which has been running successfully for three years
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Is the education of primary care physicians in the early recognition of rare diseases crucial for more effective diagnosis and treatment of patients?
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As we kick off the week, it’s important to focus on the dynamically changing institutional situation in the European Union, particularly in the healthcare sector, which has become a key area of interest since the COVID-19 pandemic
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The Polish presidency, the new European Commission, and the new President of the United States will create a new political situation – says attorney Katarzyna Bondaryk
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In Poland, we have 594 hematology specialists, which gives an average of 1.57 hematologists per 100,000 inhabitants (data as of March 31, 2024). According to regional consultants, we should have twice as many
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From January, Poland, during its presidency of the EU Council, will mainly play the role of a mediator” – attorney Katarzyna Bondaryk
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President IRSS appointed to the Council of Non-Governmental Organizations for Polish Presidency of the EU Council
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