“The establishment of a national center for rare diseases is crucial – there must be a place where all diseases are defined and a database of medical information …”

Policy Summit - Choroby Rzadkie

During an expert workshop dedicated to rare diseases, Professor Piotr Fiedor, an expert from the Ministry of Science, emphasized that Poland does not fully participate in the European system for rare diseases, which puts us at a disadvantage. He highlighted the urgent need to create legal regulations enabling the exchange of medical data at an international level. “The establishment of a national center for rare diseases is crucial – there must be a place where all diseases are defined and a medical database, where AI can be utilized for diagnosing both children and adults. If we do not do this today, we will fall behind other countries.”

Professor Fiedor also pointed out Poland’s potential in the field of clinical research, stressing that the creation of a research hub for rare diseases could significantly improve our position in this area.

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“The establishment of a national center for rare diseases is crucial – there must be a place where all diseases are defined and a database of medical information …”