We need to finally count patients with rare diseases, know where they live, and how to find them – Professor Anna Kostera-Pruszczyk

The entire conversation can be found on the IRSS website: https://irss.org.pl/podcasty

Professor Anna Kostera-Pruszczyk is the head of the Department and Clinic of Neurology at the Medical University of Warsaw and the head of the ERN Euro-NMD Center (a reference expert center for rare neuromuscular diseases), a member of the Council of the Center of Excellence for Rare and Undiagnosed Diseases at the Medical University of Warsaw.

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We need to finally count patients with rare diseases, know where they live, and how to find them – Professor Anna Kostera-Pruszczyk