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The debate focused on hemato-oncology – a field in which the situation of Polish patients has significantly improved in recent years, with further changes planned.
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We have some news to share with you regarding the latest efforts to streamline Poland’s Legislative Process
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With recent institutional changes in the European arena, ardent discussions are underway on whether to have a separate health committee in the European Parliament. Any chance to achieve unity in diversity?
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katarzyna bondaryk, rozmowy o prezydencji
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What decisions will Poland be making as it assumes the presidency of the Council of the European Union in January – lawyer Katarzyna Bondaryk
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choroby rzadkie, #RareDiseases
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We are making a significant leap forward. At the most recent government meeting on Tuesday (13.08.2024), the Council of Ministers adopted a resolution on the approval of the document “Plan for Rare Diseases for 2024-2025”. The government plans to allocate nearly 100 million PLN for this initiative
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rozmowy o prezydencji, katarzyna bondaryk
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What does it actually mean for Poland that, starting from January 2025, it will assume the presidency of the Council of the European Union? Attorney Katarzyna Bondaryk, in a conversation with Karolina Wasielewska, explains step by step what the function and role of our country will entail during this period
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Irena Rej
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Who should write the Rare Diseases Act, and what about patients who are now adults but were not correctly diagnosed as children?
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Policy Summit - Choroby Rzadkie
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“The establishment of a national center for rare diseases is crucial – there must be a place where all diseases are defined and a database of medical information …”
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Polish Members of the European Parliament in the Committee on the Environment, Public Health and Food Safety and the Subcommittee on Public Health
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Ensuring uninterrupted access to essential medicines for all EU citizens is of utmost importance. Poland, like other EU Member States, faces medicine shortages, a challenge exacerbated by the COVID-19 pandemic
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karta pacjenta z chorobą rzadką, profesor Anna kostera-Pruszczyk, choroby rzadkie, irss
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Why do we need a patient card for rare diseases? Explanation by Professor Anna Kostera-Pruszczyk
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Professor Zbigniew Gaciong, Rector of the Medical University of Warsaw, highlighted the comprehensive care provided by the clinical units under his supervision, which are capable of offering care to patients with rare diseases from birth through adulthood
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