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Policy Summit - Choroby Rzadkie
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“The establishment of a national center for rare diseases is crucial – there must be a place where all diseases are defined and a database of medical information …”
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Polish Members of the European Parliament in the Committee on the Environment, Public Health and Food Safety and the Subcommittee on Public Health
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Ensuring uninterrupted access to essential medicines for all EU citizens is of utmost importance. Poland, like other EU Member States, faces medicine shortages, a challenge exacerbated by the COVID-19 pandemic
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karta pacjenta z chorobą rzadką, profesor Anna kostera-Pruszczyk, choroby rzadkie, irss
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Why do we need a patient card for rare diseases? Explanation by Professor Anna Kostera-Pruszczyk
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Professor Zbigniew Gaciong, Rector of the Medical University of Warsaw, highlighted the comprehensive care provided by the clinical units under his supervision, which are capable of offering care to patients with rare diseases from birth through adulthood
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profesor Anna Kostera-Pruszczyk, choroby rzadkie, plan dla chorób rzadkich,
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We need to finally count patients with rare diseases, know where they live, and how to find them – Professor Anna Kostera-Pruszczyk
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Healthcare Policy Summit - Choroby Rzadkie, urszula demkow,
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In the Rzeczpospolita newspaper about the “Healthcare Policy Summit – Rare Diseases”
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rozmowy o prezydencji, prof. anna kostera-pruszczyk, irss, instytut rozwoju sraw społecznych
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Plan for Rare Diseases is the subject of a new interview with Prof. Anna Kostera-Pruszczyk as part of the “Conversations about the Presidency” series
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rozmowy o prezydencji, prof. anna kostera-pruszczyk, irss, instytut rozwoju spraw spolecznych
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Is it purposeful to establish additional Expert Centers for Rare Diseases? – Professor Anna Kostera-Pruszczyk explains
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Healthcare Policy Summit - Choroby Rzadkie Plan dla Chorob Rzadkich Urszula Demkow
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“Our first step was to reactivate the Rare Disease Plan, and… we hope it will be presented at a government meeting within the next few days,” said Professor Urszula Demkow, Undersecretary of State at the Ministry of Health
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Healthcare Policy Summit – Rare Diseases: Professor Alicja Chybicka on the urgent need to adopt the Act on Rare Diseases
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Healthcare Policy Summit - Choroby Rzadkie: małgorzata bogusz
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Another Healthcare Policy Summit about rare diseases, this time at the Medical University of Warsaw
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